Monday, January 4, 2010

2010, please bring us some peace and joy!

Well, here we are at the start of a new year. Honestly I am a little surprised that I've made it this far. Little Miss Lily has had some dramatic ups and downs. The downs are all about poor sleep and poorer behavior as a result. The ups are a riot of comedy and an awe inspiring intelligence.

I have no idea how I am going to homeschool this girl. I wanted to be able to ease into a structured routine with simple things, but she is so far past simple things it's kind of scary.

As for the medical side, she finally saw a different sleep specialist who agrees that something is "really wrong" but has no idea what and guesses it can't be fixed anyways. Since it has to do with her internal body clock it may just be how she is. But the doc did call for an MRI just to see if there was anything amiss in there and I was all for it until I was informed that she would need to be sedated. I am all for testing IF it is most likely going to lead to a diagnosis and treatment. I am not in favor if it is more to satisfy a doctor's curiosity. After all, it's not like she's not sleeping. We have to weigh the pros and cons of the drugs for anesthesia along with the recovery effects in contrast to what an MRI might gain. It is a tough decision. I am leaning towards waiting for a time when she can be still without sedation, but that may be never....

in other news, we had a nice, but quiet Christmas. For the first time since Lily was born we put up a full sized tree and I am happy to report that it is still standing! Between Lily's tantrums and a tree-obsessed cat this is truly amazing. We put it up on Christmas Eve (since I thought it would make it long and wanted it to be in decent shape for christmas morning pictures) and will take it down sometime this week after Epiphany. I really enjoy having 12 days of Christmas. What a joyous season!

Well, today is hubby's first day back at work since his Christmas leave and I had a whopping 55 minutes of sleep last night..... so, I'm going to go and try to prevent disaster until 4:30pm.


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